SHARE Atlanta - Pregnancy and Newborn Loss Grief Support

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Links to High Risk Pregnancy Issues & Stillbirth
and Possible Birth Defects, Congenital Problems, Syndromes, Infections...
Links to Drs. Collins, Korotkin, Beer, etc

He had to leave, he could not stay.
Our precious son was taken away without warning.
So many unanswered questions...
...why did this have to happen?
A fluke of nature we were told...
...an unfortunate circumstance.

Kelly C.

To find the site you would like to visit click here or scroll down the page...

placental, antibody,progesterone, cord issues, Dr.'s Beer, Korotkin, Collins, etc.

Sites with "message board" format

Incompetent Cervix

Placental Prob.-abruption & previa; preterm labor; Chorioamnionitis;

Prob. Preg.- anencephaly, fragile X syndrome, B strep, Trisomy 18,

7 Sites- Congenital Heart Disease- HLHS, TGV, ect.

Fetal Growth Restriction

3 Sites - Meconium Aspiration Syndrome

2 Sites - molar pregnancies

Female Genital Diseases and Pregnancy Complications

High risks... -incompetent cervix, CHD, etc.

Atlanta Maternal-Fetal Medicine, P.C.

Congenital Diaphragmatic Hernia - 1 site -many other links!

The Alliance of Genetic Support Groups - Long list of groups!

Sites focused on High Risk Conditions & Stillbirth

Atlanta Perinatal Consultants has been involved in the research and development of obstetrical ultrasound since 1972

Dr. Korotkin and his consultants have been responsible for many of SHARE Atlanta's healthy babies. We appreciate all they have accomplished for our community of parents. Consultants: Lawrence B. Stone, MD, Jeffrey H. Korotkin, MD, MBA, Raymond J. Allen, MD, Lawrence Nathan, MD, Marcy M. Mann, MD

Noah...Covers MANY Pregnancy Disorders and Issues

March of Dimes: Pregnancy

Begins with Family Planning - Pre-Natal Care - Post-Natal Care -

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WISSP - Wisconsin Stillbirth Service Program Website

"Stillbirth is a common occurrence - far more common than many realize. Yet there exists a general lack of knowledge about this tragic event. Learning some basic facts can be the first step toward understanding how stillbirth affects the lives of those who experience it. These pages provide basic information about stillbirth, its frequency, its causes, and other relevant information."

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National Sidelines-Toll Free Phone Number: (888)447-4754

"Sidelines is a network of support groups across the country for women with complicated pregnancies and their families. A pregnancy is termed "high-risk" or "complicated" when the life or health of the mother or baby may be at risk." This site(in conjunction with other Sideline sites has- be sure to visit listed sites):

Links to other Sideline sites, and sites that might provide aid to moms (and those who care for them) who are confined at home or are experiencing a "high risk pregnancy"

Experiences shared by parents who have "been there"

Suggestions to help the mom "at home"

Medical suggestions and explanations to aid understanding of the situation

Technical descriptions of equipment, etc. (such as the monitor)

E-mail support from a Sidelines volunteer

Georgia's Sideline Chapter - this is in "transition", please call National's office....

Sidelines National Support Network National Office:
P. O. Box 1808 Laguna Beach, CA 92652
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Childbirth Organization - "Complication of Pregnancy" ~~ by Robin Elise Weiss

Includes information on just about all commonly known complications:

pregnancy loss issues(miscarriage, immunotherapy, ectopic, blighted ovum)

uterine, placental and cervical complications(incompetent cervix, fibroids, placenta

previa)

birth defects

prenatal screening(PUBS, amniocentesis, placental problem defined, etc.)

viruses and pregnancy diseases

Group B Strep

diabetes in pregnancy

placental abruption

low birth weight

preterm labor

bed rest forums

and more!!!

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Silent Risk Issues about the Human Umbilical Cord by Jason H. Collins, M.D., Charles L. Collins, M.D., Candace C. Collins, M.D.

"This Book is Dedicated to the parents who have experienced the loss of a newborn secondary to an umbilical cord accident."

SHARE Atlanta's "Our Experience" page has several personal cord related experiences that have been shared with us:

Thirdterm Loss due to Cord accident

Midterm Loss due to Cord Accident

A Positive Response: Christa contacted me and wrote -

Hi Marcia:

Thanks so much for getting back to me. I have been in contact with Dr. Jasin Collins at The Pregnancy Institute. I talked to him on the phone for over an hour, he was great. I just received from him yesterday, a folder full of information, by the looks of things everything ever printed on the subject of cord accidents. He is an amazing man, doing amazing research. If you know anyone else who needs info, he is the man to contact.

Visit SHARE Atlanta's "Thoughts and Information from Groups and Professionals " page" for direct information from Drs. Collins...

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Anti-body Factors,etc and methods to prevent them by Dr. Alan Beer (We first posted this in 1997. Dr. Beer passed away in 2006,but his wonderful work continues with his institue.

"Our Reproductive Medicine Program is committed to helping those couples who have experienced recurrent miscarriages or repeated IVF-ET failures, achieve a successful pregnancy." Also includes...immunotherapy, antibody therapy, progesterone therapy, etc. Excellent site for "unanswered losses".

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i Village Posted 2/02

Includes information on:

Pregnancy in General

Many kinds of problems in pregnancy Includes information on:

Placental Abruption -(rate of recurrence is - 10-17% for one time. And, if you've had it twice the rate of recurrence is over 20% - 15% of the babies die)

Diabetes

Incompetent Cervix

Molar pregnancy

Placenta Previa

Intrauterine Fetal Growth Retardation

Site seems to be "growing" - check it out for new info.

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There are some excellent Obs/Gyn & Women's Health pages on the internet. Here's a selection of useful resources. -England

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Sites focused on Discussion of Problems....

The Maternal & Child Health Forum

Bulletin Board format with doctors answering questions from moms with problems in their pregnancy

All pregnancy issues discussed - Has BB's for different AGE of Women.

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Sites Focusing on Incompetent Cervix

Incompetent Cervix New 2/02

Description of procedures

Reasons for, etc.

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Incompetent Cervix New 2/02

Site FOR Incompetent Cervix (IC), a cerclage, or a difficult pregnancy

Information about early problems in pregnancy-graphs to understand better what is happening

Links to helpful sites to understand various conditions - excellent site.

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Sites that focus on placenta problems

My thanks to Lara R. in Des Moines, IA for helping me locate much of this information! 7/98

Abruptio Placentae - Authored by Slava V. Gaufberg, Harvard Medical School & Edited by Roy Alson, M.D., Medical Director - Bowman Gray School of Medicine - Medical description and information. ~~~~~~~~~~~~~~~~~~

Baby Center - Placental Abruption "Bulletin Board support and understanding around this issue.

Baby Center - Placental Previa "Support and understanding around this issue

Premature Rupture of Membranes

Preterm Premature Rupture of the Membranes/PPROM Includes risk factors and support factors

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Lynn's Pregnancy Support Page

Includes information on:

prenatal testing: an overview, AFP, triple screen, ultrasound, amniocentesis, chorionic villus sampling, etc.

birth defects, pregnancy problems, loss, infertility and support: Down Syndrome, spina bifida, anencephaly, fragile X syndrome, B strep, support for Trisomy 18, 13, miscarriage and other disorders. - Many of these issues have direct links to their pages from this page.

pregnancy health issues

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Sites focusing on Heart Diseases new 7/98

Left Heart Matters Support WebsiteParent led group with wonderfully supportive and Much informative information about this condition. Links to medical info. (under their "Links" Category) and on site "sharing by parents." This is truely a "home" for parents who have had a child with hypoplastic left heart syndrome.

"Precious Jewels" Tom and Sheila's Home Page new 11/97

Links to sites about Congenital Heart Disease

Links to sites about Liver Disease in babies and older children

Other supportive information

CONGENITAL HEART DISEASE ON THE WORLD WIDE WEB Very medical and covers many kinds of Congenital heart diseases!

"The Congenital Heart Disease Resource Page" - "My intention for this page is to give parents of children with congenital heart disease a place to find information about specific diseases and other support resources. "

D-Transposition of the Great Vessels

" Kids With Heart National Association specializes in children born with congenital heart defects (CHD), "in utero to adult", and also acquired heart disease in infants and children. The primary purpose of the organization is to offer parents, professionals and patients, resources that may help these individuals in their dealings with financial, educational, medical, emotional and other issues that may concern them. "

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"Fetal Growth Restriction" - "As many as 5% of babies suffer from growth restriction while in the womb. When born, such babies have an increased chance of suffering from infection, hypoglycaemia and jaundice as well as the consequences of birth asphyxia."

"Fetal Growth Restriction"

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Sites focused on Meconium Aspiration Syndrome new 7/98

"Meconium Aspiration Syndrome"

"Meconium Aspiration Syndrome" - The resultant hypoxia and vasoconstriction of the peripheral pulmonary arterioles can lead to pulmonary hypertension and other problems. Offers supportive medical care suggestions.

Kid's Health - "Meconium Aspiration " "The infant's first stools, it is composed of amniotic fluid, mucous, lanugo (the fine hair that covers the baby's body), bile, and cells that have been shed from the skin and the intestinal tract. Meconium is thick, greenish black, and sticky...goes on to describe aspiration...

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Sites that focus on molar pregnancies

Molar Pregnancy new 9/97 easier to understand description and discussion about the issues involved in this situation.

Molar Pregnancy Support group

Molar Pregnancy-information by Robin Weiss

Molar Pregnancy-information on Hygeia's site

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The Karolinska Institute posted 9/97
Female Genital Diseases and Pregnancy Complications

premature labor

amniocentesis and chorionic villus

Traveling while pregnant

endomtriosis

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Sites focused on Congenital Diaphragmatic Hernia(CDH)

CHERUBS...The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support

Defines CDH

Personal pictures and stories